I’m afraid I’ve been a bit remiss in not updating since Friday. Thanks so much for all your messages of support; it helps immensely.
Jade had no further seizures on Friday, not even small ones, which was most likely because of the Valium in her system, as it hangs around for quite a while. Saturday was back to normal with a number of small seizures in the morning and a few scattered thoughout the day. Dr. Stuart kindly answered a bunch of questions we had and wrote up a new prescription for our now-depleted supply of emergency Valium and then we were discharged, getting home around one in the afternoon, just in time for Jade’s nap. We managed to get one of the baby monitors functioning, so Michael and I had a lazy afternoon lounging in the backyard, enjoying a rare day of sunshine in this summer of rain.
Perhaps it’s the sunny weather (another beautiful day today) but our optimism seems to be back. Jade’s bedtime Valproic Acid got boosted again and although it’s too early to tell just how effective this will be, she had a great day today (a total of nine small seizures) so we’re off to a good (new) start.
We’ll just keep our fingers crossed for more good days.
Optimism is good. We’ll be thinking of you and your family!
Oh, sweetie, I’m so sorry Jade’s epilepsy has been so difficult to control lately. I hope that the sunshine and positive thoughts will help a little. (And perhaps they will sort out the drugs better too?) I know there’s nothing physical I can do to help — but know I continue to think of you and send you all the well wishes I have in my power.
Wann habe ich diesen Eintrag gemacht? Ob er angekommen ist, weiss ich nicht. Versuchen wir es erneut.
Ich lese Deinen blog, Fawny, um zu wissen, wie es Jade und Euch geht. Ich denke viel an Euch und leide mit Euch alle Hochs und Tiefs.
Tausend Küsschen
Omi