Epilepsy Resources

Welcome to my epilepsy resources page.  Just like every parent of a child with epilepsy, Jade’s initial diagnosis spurred us to do lots of research into the causes, treatments, and prognosis.  Friends and family were also interested in learning more, though not to the same level of detail!  Below are some of the best links I found that deal with the facts and myths, as well as links to families living with epilepsy.

If you have any questions, feel free to e-mail me at my gmail dot com address.  Use “fawnahareo” for the first part of the address.

First, here are some good links to basic information about epilepsy.

Videos from epilepsy.com:

Links to information on the ketogenic diet:

These are some blogs from families who have children with epilepsy.  Some of these kids also have other health issues, as well.

Blogs from families on the keto diet:

One of my favourite blogs, Adventures in Babywearing, doesn’t fit either of the last two categories, but the author, Stephanie Precourt, has a son who has been seizure-free for years now.  He had a very severe seizure disorder and became seizure-free on the fourth day after starting the ketogenic diet.  I believe she was the person who started the Yahoo group for families with children on the diet, which has been a fabulous source of information for us.  Check out these links for Stephanie and Noah’s story:

Here are some links to various scientific articles and research about epilepsy:

In 1997, a made-for-TV movie called “First Do No Harm“, starring Meryl Streep, illustrated what life can be like when living with a child with epilepsy, and how the ketogenic diet can work.  My husband Michael found the movie (in parts) on YouTube, which he compiled on his blog.  Click here to watch the movie from his blog.

Finally, some other links that you might find useful:

Epilepsy in the news:

2 Responses to “Epilepsy Resources”

  1. Chrisitine August 24, 2009 at 6:55 pm #

    Fawn!!! I have lost touch, but think about you guys more thanyou know!! This post is awesome! The facts, the information, the resources! all amazing! I lurk on the doose website and am sad the way things turned there, in reagrds to “losing the topic” and healthcare. However, I know how amazing that site is as well. It is a huge concern, though here in the states.

    God bless you and your gorgeous kiddos!

    I don’t know you, but certainly feel like I do!

    Love always,

    Christine
    all4jake.blogspot.com

  2. sabuj92 April 18, 2014 at 5:37 am #

    Today, 2.3 Million Americans live with epilepsy with more than 1 million of them experiencing uncontrolled seizures. CBDs (Cannabidiol) which are non-psychoactive have been proven to help reduce the frequency of these seizures.

    Gevitta is working hard creating a legal CBD spray that is derived from HEMP. We are starting with a crowdfunding campaign set to launch shortly in order to raise the money needed for production as well as further studies on the effectiveness of CBDs on other diseases.

    If you are interested in learning more about this amazing new product visit our site at http://www.gevitta.com/indiegogo

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