Frustrated

9 Jun

Jade’s got an MRI and lumbar puncture on the menu today.  Yesterday we were told she’d have to fast for 6 hours before the MRI because of the anesthetic.  And we wouldn’t know until 8:00 a.m. when she might be going for the MRI.

A student nurse came in around then and said she thought maybe Jade would be going in around 2:00 or 2:30.  I asked if we could get confirmation because if the time was 2:30, we had a half-hour window to give her some food.  Then we were told they wanted to do a fasting glucose test, as well, which required 12 hours of fasting.  First we’d heard of it.

Jade hasn’t eaten since 6:00 last night, unless you count the bottle of milk she had at about 7:00.  I was horrified that she might not get to eat all day.  I tried pushing for more information, and suddenly, we were heading for the MRI room immediately.  Yes!  A chance opening!

Jade was all ready to go in when we got the bad news.  Because I had given Jade less than a teaspoon of jam at 7:00 a.m. (how she always takes her Clobazam), we’d have to delay the MRI until the afternoon.  If a slot became available.  We still don’t know if she’s getting to have the MRI today, and Jade hasn’t been allowed to eat or drink a thing, not even water.  My heart broke when she sat down at a play table and asked for breakfast.

And now she keeps asking for her bottle.

I know she won’t die of starvation, but I still feel terrible.  And because her seizures usually come on when she’s tired, I’m worried that the fasting will exacerbate things.

And I feel this is all completely my fault because of that stupid drop of jam she had.  If I had thought of finding a different way to give her her meds, she’d be done the MRI and in the recovery room by now. Now that’s a bitter pill to swallow.

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3 Responses to “Frustrated”

  1. Jos June 9, 2008 at 3:34 pm #

    ((((HUGS ))))

  2. Jos June 9, 2008 at 4:10 pm #

    Dont blame yourself for the anal retntivness of nursing staff, they just dont want to clean up a vomit spill. And dont blame yourself cause they are bad comunicators.

    Hugs Bob

  3. Nita June 10, 2008 at 7:37 am #

    (((big squeezy hug)))

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