Still alive

17 Sep

Hi folks, and thanks for celebrating Jade’s seizure-free day with me on the last post.  She had another one (seizure-free day, that is) on Monday, but now has a minor cold so of course the seizure activity is up a bit again.  But I’m trying to stay focussed on the positive.  I can’t go back to where I was last week while Jade had those bizarre sores in her mouth.  I was so freaked out I actually went to talk to my HR person about stress leave.  I’m pretty tired today, and still anxious about all the work that needs to be done in the next month and a half, but at least I feel like I can forge on.

I think part of my weariness is actually blog withdrawal.  I have at least five or six blog posts in my head, but none actually written.  I’ve also forgotten at least one or two brilliant ideas.  (You know the ones you forget are the best ones, right?  And what a bummer that is.)  Norris is still working on deVistafying and I miss having my own computer.  But how can I complain when it’s far from straightforward and he’s doing it on his own time?  Nope, I won’t complain.  But I can pine.

The good thing about not having a computer — I guess — is that the dishes have actually been getting done every night.  Since Michael did some serious cleaning last weekend, that means our kitchen is actually looking fairly decent by our standards.  I don’t know… if I actually had my computer here, I think that price might be too high to pay.

Sorry for the lack of brilliance, but I’ve got to go pack our lunches for tomorrow, and plan supper, then get some sleep so that I can face yet another morning of trying to add “hurry” to a toddler’s vocabulary.

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3 Responses to “Still alive”

  1. Barbara September 18, 2008 at 12:49 pm #

    Brilliant! (in my humble opinion). Thanks for the update!

  2. Artist Victoria O'Neill September 18, 2008 at 5:14 pm #

    Hello there,
    I just wanted to let you know that I have a son who has epilepsy. He was diagnosed at age 3 with it. His is idiopathic primary generalized epilepsy. His only happened in his sleep or right after falling asleep or upon awakening.
    He was on and off various medications in his early life. When he was in third grade I took him off medicine while he went to biofeedback therapy. He had dramatic results from the biofeedback therapy – as in went for four years without having a seizure! Then he had one tiny seizure, and then went for another year without one, and had a tiny one. It’s been five years now. No medications!
    I’m not sure how old you have to be to try biofeedback therapy, but it may be something you would like to look into…….best of luck to you,
    Victoria

  3. Sharl September 19, 2008 at 8:04 pm #

    Hey Fawn – Just wanted to pop in to say hi and that I’m thinking of you guys!! I keep wanting to give you a call….but whenever I look at the clock, it either seems too early or too late. Things are great with us, I’m working on my business plan, hope to have something in the works for Jan…. and I’m anxiously awaiting the mail for the results form my board exams. 14.5 hrs of straight exams over 4 days. Had to close my eyes from exhaustion on exam 2 of day 3…. I knew the material really well but by day three I was feeling to great on the mental clarity part of things

    I was reading your posts on the ketogenic diet – it’s great that there is a specialist that you can talk to about the details and how to tailor it for Jade, if you Michael and her MD deciede it is an option for her.

    I was so thrilled to read she had a seizure free day. Many more of those will come. Jade is just so wonderfully unique that she needs a tailored made plan. What a gift that she has you and Michael for parents!!!

    Hope you are able to get a bit of a break this weekend.

    Sharl

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