Buh-bye Keppra!

17 Jan

I’m so excited today!  Michael had a chat with Jade’s neurologist last night and we got the go-ahead to drop the morning dose of Keppra.  We have never liked this drug.  Jade started it late in September.  We knew it probably wouldn’t help, but she was in such a bad state at the time and we weren’t going to be starting the ketogenic diet until November, so it was worth trying in the meantime.  Almost immediately, she started having those awful violent drop seizures that caused her so many facial and head injuries.  We also thought it affected her behaviour.

I believe we mentioned our suspicions to Dr. Huh when we saw her in October for our earlier-than-anticipated start to the diet.  Dr. Huh didn’t want to drop the drug just yet, though, because it’s generally a bad idea to change to many variables at once.  If things get worse (or better), you don’t know what the most likely cause is.

Anyway, today’s the first day Jade got to skip her half pill of Keppra.  And she’s had NO BIG DROP SEIZURES today.  Well, maybe that’s a coincidence.  But she’s also bright and energetic.  Also somewhat emotional at times.  But!  I have great hopes that we’re seeing the last of the drop seizures.  Wheee!


5 Responses to “Buh-bye Keppra!”

  1. Adventures In Babywearing January 17, 2009 at 5:48 pm #

    Woo Hoo! I still remember the last time Noah had a drop and also the day we had our last dose of Keppra!


  2. Captain Momma January 17, 2009 at 7:25 pm #

    That’s awesome Fawn! What a feeling you must be having!

    Praying for better days ahead 🙂


  3. Michelle Mitchell January 17, 2009 at 10:16 pm #

    Wonderful–and I see Stephanie’s comment above. I was wondering if you’d got together with her, knowing her story with seizures and the kerotin diet.

  4. Jenny January 18, 2009 at 5:54 am #

    At a low dose of Keppra (the only drug she’s currently on) Naomi seemed fine. Now she’s on a high dose and I think it’s causing vertigo. Sometimes she falls and it doesn’t look like a seizure at all just looks like she got dizzy. That’s come since higher dose of Keppra.
    It sucks though, because any time they have a bad day there’s so many things to rule out! Teething? Sickness? Meds? Bad nights sleep? The list seems endless.
    Our son never had any health problems. If something happened you knew exactly what to do! Having to medicate your child, sucks!

  5. Nemmy January 19, 2009 at 8:05 pm #

    Here’s hoping… 😀

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