I’m so excited today! Michael had a chat with Jade’s neurologist last night and we got the go-ahead to drop the morning dose of Keppra. We have never liked this drug. Jade started it late in September. We knew it probably wouldn’t help, but she was in such a bad state at the time and we weren’t going to be starting the ketogenic diet until November, so it was worth trying in the meantime. Almost immediately, she started having those awful violent drop seizures that caused her so many facial and head injuries. We also thought it affected her behaviour.
I believe we mentioned our suspicions to Dr. Huh when we saw her in October for our earlier-than-anticipated start to the diet. Dr. Huh didn’t want to drop the drug just yet, though, because it’s generally a bad idea to change to many variables at once. If things get worse (or better), you don’t know what the most likely cause is.
Anyway, today’s the first day Jade got to skip her half pill of Keppra. And she’s had NO BIG DROP SEIZURES today. Well, maybe that’s a coincidence. But she’s also bright and energetic. Also somewhat emotional at times. But! I have great hopes that we’re seeing the last of the drop seizures. Wheee!