Five words

19 Apr

Jade’s verbal development is behind.  Her typical sentences are only two words long, very occasionally three.  We’ve seen improvements as the diet has started to control her seizures, but she still prefers to communicate with us (non-stop!) two words at a time.

However, we’ve just had six amazing days, with four of them being seizure-free.  And tonight she used her first five-word sentence.  It was during a tantrum of not-wanting-to-go-to-bed-itis, and it was accompanied by sobs and screams and unearthly howls, but both Michael and I thought it was a beautiful sound.

What was she telling us with her new-found eloquence?

“No want it, the bear!” (repeat 20 times)

I helpfully and kindly yelled down the stairs told her, “If you don’t want your bear, throw it on the floor!”  Which was greeted by a scream of despair.

And yet, we were delighted.

5 Responses to “Five words”

  1. Cathy April 19, 2009 at 11:23 pm #

    Yay!! Fawn – I’m so happy for the good days. Your hubby is a trooper. I love this bit of light that you have shared. Your darling daughter has gone through soooo much! I bet being able to throw a tantrum AND find some words to describe her frustration feels soooo good to her.

    I’ll be praying for continued smooth sailing.

  2. allmycke April 20, 2009 at 1:12 am #

    It must be a relief for Jade to be able to express her feelings like this – and for you to see her progress. I often think about you and your family and am awed at the work it takes for all of you, just day to day.

  3. Idania April 20, 2009 at 4:21 pm #

    That’s wonderful news! It is frustrating to be trying to mind-read everything that they want. Jillian says an occasional word here and there(like one word every 3-5 days), so I tell myself that she will eventually get there too.

    You and Michael are doing an amazing job with your girls and don’t forget it!

  4. Beck April 21, 2009 at 2:56 am #

    Hooray for talking!

    Have you read Steph’s blog, Adventures In Babywearing? SHe went through a long saga with epilepsy with one of her children and has a very inspiring story about using a special diet with great results with him!

  5. Beck April 21, 2009 at 2:58 am #

    (oh, and not Thunder Bay! I’m deliberately a bit vague about where I am, but think… um… less north.)

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