Perspective

29 Jul

It has been a hectic week.  Four of the five suitcases from our trip are still sitting, unpacked, on the basement floor.  I’ve spent a total of about 16 hours in the recording studio, which has been thrilling and exhausting at the same time.  Jade has been attending music camp for three quarters of an hour every morning, the sessions being just short enough that it doesn’t make sense to try to run errands as they unfold.

A few days after we got back, Halia came down with a fever and some kind of stomach bug and I got to reacquaint myself with the art of catching vomit with whatever happens to be available.  On top of that, she is in the throes of exploring preschooler independence, which manifests itself in saying mean things to Jade (which makes Jade cry), selective listening, tantrums, and teenageresque expressiveness.

“Halia, get off my chair,” I might say.

“Okaaaaaaaaayyyyyyy,” she’ll drawl back, her voice implying the rolling eyes she has not yet learned to do.

She’s a challenge for sure, and she tests my patience daily.  Hourly.

This morning I was thinking back to what Jade was like at this same age.  That puts us back in September of 2008, a time I try not to think too much about.  That was a month before Jade started on the ketogenic diet, a time where her seizures were getting progressively worse, the last month we had her in daycare before her seizures became so severe it was no longer safe to send her there.

I remember hearing friends bemoaning their children’s behaviour, who were doing exactly the same kinds of things Halia is doing now.  I remember thinking, “I would take those challenges over what Jade is going through.  Any day.”  I remember wishing I could complain about the same mundane things.

And here I am.  It’s exhausting, yes, but oh my… Right at this moment, I feel so damn lucky.

5 Responses to “Perspective”

  1. Captain Momma July 29, 2011 at 11:15 pm #

    Can’t wait to hear more about your recording, sounds great! I still have to upload the dress photos and the computer is still selective in working so I catch up on emails here and there🙂 I hope Halia is getting much better, those sick days are never fun😦 I am so glad you have some normal things to revel in! Yay!

    Kelli

  2. Libris August 1, 2011 at 5:32 am #

    Hi!

    First of all, greetings from Finland! I have been reading your blog for a while and am inspired the fresh feeling of it. Hope to see more pictures if the landscape where you live.

    I am very interested about the keto-diet and the suitability for children, as it is almost only way to keep my daughter’s weight in control. Do you have any special meal recipies your child especially likes?

  3. Jenna August 14, 2011 at 1:05 pm #

    Hi
    My name is Jenna and I came across your site. Jade is an amazing, courageous, strong and determined fighter. She is a brave warrior, smilen champ and an inspirational hero. i was born with a rare life threatening disease, and I love it when people sign my guestbook. http://www.miraclechamp.webs.com I am from BC. Canada

  4. Laural Out Loud August 22, 2011 at 9:53 pm #

    Whenever I read or hear about a family struggling with things much worse than my daughter’s sassy attitude, it most definitely puts things back into perspective. I’m just so so glad that the diet worked for you, and that the most annoying thing for your right now is Halia’s eye rolling!

    • Tine August 29, 2011 at 2:37 am #

      I just read Michael’s blog post about your climbing trip while being in Ontario – wow, seeing pictures of little Jade making her way up a rock certainly puts things back into perspective🙂 !! Such a miracle🙂 !!

      Still, I remember very well (from the times I was working at the day care …) how challenging the daily struggle with sassy little ones can be … Hang on there🙂 !!

      I’ll drop you a line soon – these days, I’m confined to bed, though, struggling with sinusitis😦 …

      Lots of love from Germany !!

      ♥ ♥ ♥

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