I’ve been meaning to post about Jade for months, but here we are at 3 months post-wean and I’m just getting around to it. But hey, Michael actually did post about what it was like for Jade to come out of ketosis. It was pretty fantastic for her to have her first “normal” Christmas dinner ever. And in January, we went to Disneyland, a trip we just could never face while we were still doing the diet. Both girls were beyond thrilled to meet all their favourite princesses. But I digress…
- In the first three months since the wean, she grew over an inch. She has grown almost a whole inch just in the past month. Compare that to the one inch she grew during the whole of 2013.
- She has finally just about the reached the 48-lb mark that allows her to legally switch to a booster seat.
- In the past two months, her lips have returned to normal. For the 5 years on the diet, they were frequently cracked and bleeding, despite soaking them with warm water and sealing with lanolin twice a day.
- Her energy level, which we thought was quite good on the diet, has gone way up. This means she’s become rather fidgety and has a hard time sitting still (at the dinner table, for example) which was never an issue before.
Jade is very much enjoying eating as much as she wants, and I’m thrilled that she no longer has to go hungry, which was a problem between meals over the past couple of years. Unfortunately, her frequent stomach aches have
In February, I accompanied Jade to the BC Children’s Hospital for her first EEG since getting out of ketosis. It was okay, but they did observe a couple of epileptiform discharges… that is, some abnormalities in Jade’s brain waves that are not seizures in themselves, but suggest she is predisposed to seizures. (Well, of course she’s predisposed to seizures; we know that because she had them.) The neurologist told us she wouldn’t panic about these because many people may have these abnormal brain waves with absolutely no consequence.
What bothers me is that Jade’s previous two EEGs were, as far as I know, amazingly normal. Last week, Michael and Jade returned to the hospital and did a 24-hour EEG. We haven’t heard about the results from that yet and am hoping for a call from the neurologist soon.
In the meantime, we are pursuing these chronic stomach pains, testing a theory that they are related either to food intolerances or dysbiosis…
For me, weaning off the ketogenic diet has been both a huge relief (packing school lunch is sooooo easy now!) and frightening. Just as the hardest part about starting the diet was the psychological impact, the hardest part of weaning is the feeling that our safety net is gone. All kinds of seemingly small things get my guard up. Last month, Jade developed a strange habit of yawning or gasping between every few words while talking. I immediately started to wonder if this could be some kind of seizure. It has since disappeared. The neurologist saw a video I took and didn’t think it was seizure activity.
I’m not sure how long it will take me to stop feeling jumpy. But I’m trying not to worry. And mostly succeeding. Overall, we are happy to have this chapter behind us. And Jade is thrilled and thriving. For now, that’s what’s most important.