Tag Archives: special needs

A few disjointed thoughts…

20 Jan

On Decisiveness

Michael’s been pretty sick this past week and a half with a doozy of a virus that just won’t quit. It’s left him drained in the evenings, occasionally to comic effect. Yesterday evening when I asked him if he was going to band practice, he gave me this unequivocal answer. “No! Maybe… Yes. I don’t know.” Yes, that actually came out of his mouth.

(He went.) (And played between bouts of coughing.)

On Health

I’ve been wondering for a while if I have hyperthyroidism; there’s some history of it in my family. I have many of the symptoms (irritability, insomnia, fatigue, sweating, increased appetite… and did I mention irritability?) but don’t have many others (intolerance to heat, hair loss, weight loss…). I had a doctor’s checkup yesterday (you know, that yearly thing we ladies need to do) but the doctor was running a bit late so there wasn’t time to discuss signs and symptoms of hyperthyroidism, as I hadn’t done any research before going.  The only thing I already knew about hyperthyroidism is that it can make one irritable.  (Theme? What theme?)

Last night, I wondered if I should call the doctor to ask about adding a thyroid function test to the routine bloodwork he was sending me for.  When I looked at the lab requisition, guess what was already checked off? “Suspected thyroid disease, not yet diagnosed.” So, was that just a coincidence, or did the doctor notice something he didn’t mention to me? Either way, kinda freaky.

On Cold Weather

It’s been a deep freeze around here all week, with temps dropping down between -35 and -40 °C. Yesterday, I was driving home along Robert Service Drive, which runs along the Yukon River, in the semi-twilight. The sky was a beautiful dark blue, and one star (actually, I suspect it was a planet…  I don’t know enough about these things) shone brightly directly above the cliffs. The road was perfectly clear, but above the river, the ice fog rose up straight and still. Looking out the driver’s window, my eyes hit that thick fog and gave me the feeling of driving next to a wall, most jarring when one expects to look out across the water. Very eerie and very cool at the same time.

On Improvising Crafts

Halia is on a painting kick.  I have a plastic egg carton that I use to portion out small amounts of tempera paint and she goes to town on a stack of scrap paper.  Last week, I had no yellow left and was running low on red, so we improvised. I had a jar of ModPodge and figured it was a good “white base” with the right consistency. So I filled three egg compartments halfway with ModPodge and let Halia mix drops of food-colouring in. This is great for working those hand muscles AND for a counting exercise. (No more than TWO drops, Halia. No, I said TWO. THAT was four.) Then a Q-Tip in each compartment for mixing, and we had beautiful colours that dry to a glossy finish.  The only problem with it is that the pages DO get sticky. And ModPodge doesn’t easily wash out of clothes once its dried, so smock up the kids!

On Being a Special-Needs Mom

None of us has enough hours in the day. I don’t care how simple your life is, these days we’re very good at filling up every minute with stuff we “have to” do.  Sometimes I have to stop to remind myself that it is literally impossible to do it all. Yes, I would love for the dishes be done every night, the beds made every morning, and the laundry folded and put away every afternoon, but the only way I could accomplish that would be to give up on everything that makes my life exciting.

Now, Jade does have special needs. But she’s loving school so much and growing intellectually by leaps and bounds, and besides that, one day we’ll be able to wean her off the keto diet, so I feel there’s nothing for me to complain about. But sometimes, I have to stop to remind myself that there is extra work involved. I don’t just mean preparing her meals and snacks. On good days, I can make three meals and two snacks for her in about half an hour. When it’s suppertime, assuming I have the ingredients on-hand, I can make her meal in about five minutes.

But there’s other stuff. Like dragging her to audiologist and ENT appointments that start three hours after they’re scheduled.  Doing paperwork to get funding for some respite, or to cover the few medications she’s on (all of them for combatting side-effects of the keto diet). Spending literally seven hours trying to get a prescription for antibiotics to combat an ear infection, because the antibiotics must contain fewer than 100 milligrams of carbohydrate over the course of the day. And then there’s the occupational therapy activities we’re supposed to do every day. Balance, hand strength, core strength… How do you fit that in between the end of school, downtime, and making supper?  Even if it’s just for 15 minutes? I don’t, that’s how.

On Succinctness

Yep, this post isn’t it. Whoops. Didn’t mean to ramble on so. Look, I can’t even stop when I’m talking about being succinct.